Business | NAFW
| Name of respondent:Ian Lane |
| Are you responding on behalf of an organisation? YES |
| If so please give the name Cardiff and Vale NHS Trust |
| Address:University Hospital of Wales |
| Telephone number:029 20744463 |
| Would you be willing to give oral evidence to the Committee? Yes |
| If the evidence you give below is your personal view, rather then that of an organisation, please state whether or not you are willing for your evidence to be published by putting a X in the appropriate box below: |
| I am content for my evidence to be published X |
| I am not content for my evidence to be published |
Business | NAFW
| 1 |
How can information technology be used more effectively to track and facilitate the patient’s journey? |
| Response |
Full availability of the CaNISC system including a module for MDT meetings. Availability of CaNISC to clinical areas as soon as possible. |
| 2 |
How effectively is research and good practice being integrated with service delivery? What can be done and by whom to improve this? |
| Response |
Need sessions in clinicians work programmes for educational and academic meetings. Need funding for research staff (medical and nursing). Research and educational standards need to be built into commissioning. |
| 3 |
What are your views on the complexity of commissioning services? Is the process hampered by the involvement of the local health boards, cancer networks and Health Commission Wales? How could it simplified? |
| Response |
Current lack of clarity in commissioning, hampers patient management. The network boards should insist on commissioners meeting standards through service reconfiguration. Suggest a Regional Commissioning for Cancer Services in SEW/SWW and NW. |
| 4 |
What evidence is there of the value of screening and immunisation? |
| Response |
Well established data for breast and cervix. Awaiting evidence for prostate, colon and lung. |
| 5 |
What are the barriers to the NHS in Wales keeping abreast of, and responding to, developing technologies and therapies? How might these barriers be overcome? |
| Response |
There is little scope for investment in new therapies other than NICE appraisals which lag behind published evidence. Lack of general availability of modern techniques which require LHB approval. |
| 6 |
How can the NHS and the voluntary sector work together more effectively to deliver services? |
| Response |
Care of cancer patients should be an adequately funded service, with plans drawn up on the basis of required investment, and not dependant on charitable donations. Voluntary Services could then deal with providing additional quality to the patient experience. |
| 7 |
How can the collection and use of data on where the terminally ill spend their last weeks or months be improved better to inform service provision for those people? |
| Response |
Need data on delayed discharge to determine requirement of social services. |
| 8 |
There are a number of issues around prescribing and the cost of drugs: |
| 8(i) |
What should be done and by whom to reduce continued prescribing of inappropriate drugs? |
| Response |
All cancer care should be protocol driven, following agreement with Primary and Secondary sectors. |
| 8(ii) |
Should people who are prepared to pay privately for drugs not available to them on the NHS, be able to do so without having to become private patients and having to pay for all their treatment? |
| Response |
The NHS should provide the best possible NHS care for all patients within existing resource. Any patient should be able to purchase additional elements that are important to them. Care should be equitable across LHB boundaries. |
| 8(iii) |
Do doctors, pharmacists and other health professionals have adequate access to independent advice and guidance on the prescribing of drugs? |
| Response |
Health Professionals must analyse evidence from as many sources as possible and prescribe for individual patients in line with their needs. |
| 9 |
Are services centred on the patient, with service users consulted? If not what are the reasons for this and how patient involvement be improved? |
| Response |
Services are centred on patients and their families. |
